Handicapped

I recently overheard my neighbor and his friends discussing their golf handicaps.  I've heard this term used re: horse racing and it always confused me.  When I was young, the phrase 'Hire the handicapped' was bantered around. There were also ranks of parking spaces designated exclusively for these so-called unfortunates with the wheelchair icon painted on pavement.  More recently the word has been designated insulting.  Even 'disabled' is used with great care. 

It's a weird word. I remember reading somewhere it came from 'cap in hand', a reference to street beggars in older times who often displayed (or faked) disabilities to collect alms in a hat.  Whatever. It's become distasteful.  It's used with a kind of irony among my friends who are suffering the indignities of illnesses and aging.  One friend not only copes daily with the devastation of a brain tumor, but has lost the use of her hand.  Another has not quite recovered from hip surgery... another wrist surgery; then there are musicians' hand issues, drummers' spinal woes, general anxiety and depression... cardiac problems. We are an aging generation... we have used and abused ourselves in various ways.  

I am sympathetic; I've been lucky to survive and recover.  Two weeks ago I had an accident-- not life-threatening but enough to limit my usual freedoms. I've become, in a temporary way, handicapped, as my friends joke... and it's jokable, not permanent, unworthy of a special parking space or license plate-- or hopefully not.  

But I've been watching a good deal more television.. football, taking in the Taylor Swift/Travis Kelce phenomenon which I'm sorry to say makes me less fond of the Chiefs.  I'd like to see an underdog in the Super Bowl, despite the political and social media feeding frenzy this celebrity serendipity has caused.  I mean, if she changes the election, like Oprah did in 2008, well and good.  But for me it's enough-- the money, the endless athlete's endorsements and influencing... the massive payments in addition to the fortune they are paid to play which makes the heroes of my era look like middle-class losers. 

And these endless boring game shows-- with second-rate celebrity hosts and guests and absurd criteria and rules... who is watching this stuff?  It just seems desperate and forgettable.  

I'm reading Septology-- the seven-part masterpiece of this year's Nobel-winning author, Jon Fosse.  He's quintessentially Norwegian and for the last decades I've considered Scandinavia my second home. I've left my heart there-- a couple of times, not to mention a beloved bass guitar waiting for me to tour again. Anyway, it's a wonderful winter read. The snow... the small towns of Norway-- the fjords, the boats, the childhood reminiscences. The narrator is a painter-- a loner who has suffered losses, but manages to find a kind of redemption in his work which I can almost see, somehow.  And his quiet obsession with religion, his daily coming to terms with what is God-- in his art, in his simple way of life.  It's sublime.

My temporary injury and this novel remind me of what has been lost-- and how we go on, we find our lives and our meaning day by day, reinventing our path to accommodate the normal indignities of age, the diminishing exterior 'light' of our presence as the years pass.  And still, we find some spirit-- some determination-- we befriend the present and reintroduce the past like an old boyfriend who was amazing but no longer serves.

For many of us, this reveals and highlights our so-called handicaps. Some of us become defined by this alone.  But for others, we begin to see the less inspiring narratives of our culture as the true handicapped-- the banal, silly, petty, appearance-obsessed, botox and Wegovy-dependent overpaid housewives, non-achieving but omnipresent celebrity image-makers whose contributions are well celebrated but are anything but world-changing. 

Today I pray for my distressed and disabled friends.  For me I have the blessing of choosing the option of rehabilitation-- of acceptance, of continuing to exist with some kind of muse pulling me along, coaxing and cajoling.. a deepened sense of what remains, of God in my small universe, whatever that means... of life... cap in hand not for pity but for reverence and awe. With grace I intend to recover from this small setback and shine as I can in this flawed and aging skin I've been so generously granted, God willing. 

The Vanishing

 I've always been subject to a little claustrophobia. It could stem from a series of early childhood experiences locked in a closet but that's maybe too simple.  A couple of malfunctioning elevator episodes didn't help.  But the root of it feels deeper-- almost genetic. I've mentioned before that my father kept a packed suitcase in the closet at all times.  As for me, in the deepest, most tender sweet spot of a promising relationship... at the very crux of mutual intimacy, I get the urge to run.  It's a serious flaw; it's caused pain to others and I've paid a price. 

Analyzing, I used to pout as a teenager and warn prospective boyfriends not to wall me in with their expectations.  I even tried a psychiatrist who had the usual theories and a few more, but no cure. Of course, raising a child on my own, I easily laid aside my angst and put his priorities first.  But these days there's nothing I love more than the sense of a new day like a blank canvas-- no calendar, no appointments-- just a wide open time-field waiting for my footprint. It's a sense of security for me-- perhaps a small reassuring exercise in personal freedom.

Last night, at the close of a fairly non-scripted day, I watched a late-night film called The Vanishing-- the one from 1988, in Dutch, based on a book called The Golden Egg in which the heroine suffers from a recurring nightmare of claustrophobia.  In the film, she is part of a couple on a trip-- driving. They argue a bit; she vanishes at a gas station where she is abducted, unobserved, by a villainous character and never seen again.  Newspapers publicize her disappearance, her boyfriend spends years trying to figure it out.  But eventually the abductor begins to contact him.  He will reveal the mystery, he says, if the boyfriend agrees to the very same fate. The obsession for truth overcomes him and he agrees-- is chloroformed and wakes up in the dark where his lighter reveals he is in a coffin, buried alive.  Absolute horror.  Double horror.

For anyone prone to claustrophobia and film-empathy, this makes for a sleepless night.  Coupled with that, I learned of the death of a friend.  In grief, I cannot help but explore afterlife theories.  At least one member of the deceased's family is a devout Catholic and takes great comfort in the assurance of a heavenly transition. I, on the other hand, am not sure, have entertained all possibilities.  

My mother who was interred above my father in a double grave feared burial and begged me to have her cremated. My older sister thought otherwise.  Still, after six years, it haunts me.  Although we know logically the dead do not think or feel, I regret that I was outvoted and could not give her this simple last relief.  

In case we choose to ignore our age, the mailbox periodically reminds us with funeral options, cemetery real estate offers and hospice information. It's wearying and worrying... and while the ultimate choice remains to our heirs, I wish I could make some kind of peace with my ultimate destination.  I find funerals-- while comforting in a way, also appalling.  One of my friends was given a wake with a dramatic presentation in an open coffin. I kept hearing her implore me to tell people to fuck off and stop looking at her.  Some of them she openly disliked.  It was so unfair...  as though here is our final worldly act and we don't get the last word.  

My father the emotional claustrophobic had spent much time in the trenches during WWII.  In the end he lay in his simple coffin, draped with the American flag as a hero, and seemed to embrace his fate in the same manner. It was as though death had been a kind of relief to a life as a 'tough-guy' with its anxieties and unvoiced issues.  For us who have been raised with at least the illusion of free choice, the nightmare is being overruled-- told what to do-- held against our will or tied down or up.

I often wander through the Egyptian wing of the Metropolitan Museum.  I must say, the custom of buryng the dead with their possessions-- with some space-- is appealing.  Not practical for us Americans here.  Even to name a fraction of a bench in Central Park for my Mom was impossible. They are taken... no waiting list for the dead... they are permanent.

Anyway, I will continue to struggle with my philosophies and ideals-- to weigh logic against belief, to pray for my friends, to deeply speak to God, to thank Jesus often, and nevertheless to wake up periodically in a nightmare of captivity, of immobility.  Imagination? We get up, walk around, open a window, breathe.  For now.